Lymphedema is a disorder of the lymphatic system, which performs several important functions in the body, including fluid balance, immune response and waste removal. The lymphatic system contains lymphatic vessels, ducts, organs and nodes which help to drain extra fluid back into the bloodstream.
Lymphedema occurs when there is an issue with the lymphatic system that causes fluid and/or abnormal tissue to build up, usually in the arms or legs. Lymphedema can occur at birth or can develop later in life. There are many potential causes of lymphedema, including cancer/cancer treatment, obesity, chronic venous insufficiency (poor circulation), infection and inflammatory disorders. And in some cases, lymphedema has no recognizable cause. Lymphedema is generally a chronic, progressive disease, with most treatment strategies being aimed toward slowing progression and reducing complications.
Lymphedema is a condition that can severely impact quality of life and occasionally cause life-threatening complications. Without treatment, some people will progress to develop significant limb swelling, pain, skin changes, open wounds, infections and more. People with more severe lower extremity lymphedema often have reduced mobility, which can in turn make their symptoms even worse.
Unfortunately, lymphedema is both underdiagnosed and undertreated. There are very few lymphedema resources available in Oregon, and many patients have struggled for years with their symptoms before receiving any care.